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Azathioprine? really don't want to give to my 3yr old son

Posted: Sat Jul 30, 2011 8:48 am
by Paulapip
Hello my names Paula, and i'm new to this site.
Really looking for some advice as i feel like i've exhausted every possible avenue to calming down my 3yr old sons atopic eczema. After numerous doctor, dermatology appointments, they are now suggesting that my son goes on a course of medication called azathioprine for 6 months. I have looked up this proceedure and i really corncerned about the side effects. Currently my son is on his 3rd treatment of prednisonlone tablets, and like every time he's on them his skin clears up, but after a few days the eczema creeps back. We have been told his immune system is on overdrive, because of this he reacts to most foods and is prone to infections which he gets most weeks. He is on a strict diet which we are keeping him off most common foods which flare up eczema, and once again the sleepless nights are creeping up on me. Does anyone think a kinestetic would help? or i'm thinking of booking up another set of acupunture sessions. Any feedback much needed. Must go my son is itching himself apart again. :(

Re: Azathioprine? really don't want to give to my 3yr old so

Posted: Mon Aug 01, 2011 11:33 am
by Kats
Aw you poor thing. I can feel your torment..........you need a (((hug))) :)

It sounds like you are not keen on the meds. I dunno, I don't feel that there is any magic cure out there as far as the med world goes. I lost faith in doctors a long time ago and see them more as legalised drug dealers than people there to help you. The pharmaceutical industry is big business. All meds do is treat the symptom and not the cause. It's the root cause that needs to be addressed for health and wellness to follow. The question is, are the side effects worth the risk for some temporary relief?

The strict diet must be so hard on the lil guy too. It sounds like you have been able to pinpoint the triggers. I've always been wary of citric acid. Not so much the natural stuff but the nasty citric acid that is basically fermented fungus that's soooo hard to avoid in the food world as it seems to be in almost everything edible. If you aren't aware of it, research it.

I joined the forum here a few weeks ago to share how I managed to cure many years of skin problems. After trial and error and research after research, and spending out fortunes and crying rivers, I finally found something that works for me. I know we are all different and respond differently, but have you tried the lil un' on borage and fish oils? If nothing else, it's worth a try??

If I can be of any help, please just shout.

Good luck. x

Re: Azathioprine? really don't want to give to my 3yr old so

Posted: Mon Aug 01, 2011 2:33 pm
by Paulapip
Thank you Kats
I find it really helps in talking to someone who has been through it or is going through it. I have started on the wet wraping again, feel it does lock in the moisture into his skin, but he crys out telling me he hates them. i feel the same regarding your thought in the big buisness in creams and medication, i have a endless list of creams, potions and lotions that my son has tried out in vain, all new products i feel like he's become a guinnie pig. Think i need to think positive, but hard during those sleepless nights. We will get there in the end, but not down that route of evil drug pumping my son up. I will look up the items you mentioned, thank you
Paula :)

Re: Azathioprine? really don't want to give to my 3yr old so

Posted: Tue Aug 02, 2011 8:29 pm
by Kats
Hi again Paulapip,

If only there was a magic wand that could be waved to make things better. x

I have found a personal cure in the oils and can't stress my findings to others enough. And I do know that what may work for one, may not work for another, but anything is worth a try and it's all completely natural and harmless.

If you want to try the oil route..........I'm not an expert, wish I was. But would suggest that you cut the dosages down to half. I do a 500mg borage and a 410mg cod liver oil in the morning and a 500mg borage before bed. As your lil guy is so young, you could try and half the dosages for him. Not sure how easy this would be? Maybe you can get the caps in smaller sizes or you could prick them and measure half the full amount onto a small spoon and see how things go.

You can prick open the borage caps and rub that directly in, but the cream if you can get it, is awesome. It's been weeks now and I'm still clear and can't believe how well this is working :D

Don't know if you have read my other posts................but I am totally against the use of mineral oils in the form of petro-chemical by-produce such as paraffin etc in any products..........especially in eczema treatments. Am also very against sodium lauryl sulphate which is in almost everything and of course parabens. Even E45 which many people use contains paraffin.........which is not safe. It's evil stuff and should only be used as a propellant to fire heaters and run engines. No one would want to rub engine oil over themselves or their beloved children, but they do it all the time, unaware of what they are actually doing. Then they wonder why the problems don't go away or get better.

Another thing I found re the food triggers - Please research citric acid. It's in almost everything. And if you think about it, when doing food elimination tests.............its's perhaps not the main foodstuff to blame, but the additives. Yet people will mistakenly omit the foodstuff from their diet, without realising that it could in fact be due to citric acid. An example......a bad example perhaps, would be say shop bought biscuits. A shop bought biscuit may trigger an outbreak so you eliminate flour, sugar and dairy from the diet. But shop bought biscuits also contain citric acid............which is created by fermentation of crude sugar with the fungus Aspergillus niger and is used for flavoring, in effervescent salts, and as a mordant (color-fixer) in dyeing. So in fact, sugar, flour and dairy may not be the trigger after all but because of the flare up, we deny ourselves any more of the assumed culprit. You may like to check out http://www.ukfoodguide.net/e330.htm Food for thought?

Hope to have been of some help Paulapip. If you need any advice or someone to talk to or anything, I'm here :)

Here's to a brighter, scratch free future. x

Re: Azathioprine? really don't want to give to my 3yr old so

Posted: Wed Aug 03, 2011 8:16 pm
by HealthyM
Kats--

I agree with you. My son can't have orange juice BUT can have the organic orange itself. Part of the problem is that we have been going way very far from eating close to nature. I took my son of fruit juices that you buy in the stores. My pediatrician even advised me not to give him any more store bought juices. I only give him real fruit, and I became a queen of the smoothies. I have a Blendtec and I use it every day. I have been putting in them spinach, flax seed and fruit and to sweeten it I add bananas. We love them and we are eating super healthy now.

I know though that my son can't have wheat...but yes other kinds of gluten. Unfortunately wheat is used in a LOT of things because the food industry wants to make things appear prettier and fluffier, then they add wheat ...Even in nuts! So I recommend everybody to be a detective, but there is no doubt to me that eczema is caused by the foods we ingest.

I am also against any chemicals like the ones you mentioned, and that is why I hated steroids. The side effects are horrible and if you get on them you have to keep switching...

Re: Azathioprine? really don't want to give to my 3yr old so

Posted: Mon Aug 22, 2011 9:30 pm
by green cyber mummy
You sound like you have tried loads but have you tried zinc paste bandages? Just that I am having great success with my 3yr old DD at the moment with them. Her itching was so bad and driving us all mad. She was sad and unhappy and although we are not out of the woods yet, the last few day using them has brought about a massive change in her skin condition and more so her itching. Still waking at night but not the mad screaming and scratching that there used to be.

Keep us posted on progress.