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Lamellar ichthysosis
Posted: Mon Sep 14, 2015 5:56 pm
by sunil ismail
Am a by birth ichthyosis patient. I just want to know is the GENE THERAPHY is effective for lamellar ichthyosis? If it's so could please suggest me a gene therapy center in any where of the world. Waiting for your reply
Thank you in advance
Regards
Sunil Ismail
Re: Lamellar ichthysosis
Posted: Thu Sep 17, 2015 4:09 pm
by Dr Roger Goulds
There was a paper written in one of the journals some time ago about gene therapy and LI, but I do not know of any further advances, I believe research is still being undertaken. It is not clear where you live but there are several organisations that provide information and support. The Foundation for Ichthyosis and Related Skin types,
www.firstskinfoundation.org , The British skin foundation,
www.britishskinfoundation.org, the European network for Ichthyosis , and
www.ichthyosis.co.uk