JUST NEED SOMEONE TO TALK TO...

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knicknack954
Posts: 2
Joined: Sat Nov 05, 2011 6:00 pm
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by knicknack954 on Sat Nov 05, 2011 6:15 pm

JUST NEED SOMEONE TO TALK TO...

HI THERE MY NAME IS DANIELLE AND I HAVE A 16 MONTH OLD SON WHO HAS BEEN LIVING WITH SEVERLY INFECTED ECZEMA SINCE HE WAS 1 DAY OLD.. WE HAVE TRIED ALL THE CREAMS AND STERIOD TREATMENTS WITH NO LUCK ONCE WE STOP USING THEM AFTER THE 5 DAYS... EVEN WHEN WE GO BACK TO USING THEM A FEW DAYS A WEEK THEY DO NOT WORK... IM AT MY WITS END WITH IT ALL... MY SON HAS TO BE BANDGED FROM HEAD TO TOE MOST DAYS INCLUDING A FACE MASK AS ITS EXTREMELY BAD ON HIS FACE... I NO THERE IS LOTS OF PPL LIKE ME WHOS CHILDREN HAVE THIS AWFUL DISEASE BUT IM STRUGGLING TO FIND PPL TO TALK TO ABOUT IT AS MY FRIENDS AND FAMILY DO NOT ALWAYS UNDERSTAND HOW HARD IT IS...THANX X

Di
Posts: 4
Joined: Thu Nov 03, 2011 11:30 am
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by Di on Sun Nov 06, 2011 9:34 am

Re: JUST NEED SOMEONE TO TALK TO...

Hi,
Im very sorry to hear about your sons severity of eczema. My 3yr old has very severe eczema now also but when he was younger it wasnt too bad.
We have tried everything possible including creams, emolients, ointment, bath adds, oral sterroid course etc and still he scratches.
Have you had any allergy tests done? Maybe hes allergic to the millk? My son tested negative to all
Anyway, we seem to have controlled it a little by using a combination of Neem oil, Refined Emu oil and Olive oil.
Its very hard watching your child suffer, but please dont rely too much on steroid creams, it thins the skin rapidly. X

knicknack954
Posts: 2
Joined: Sat Nov 05, 2011 6:00 pm
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by knicknack954 on Mon Nov 07, 2011 1:43 pm

Re: JUST NEED SOMEONE TO TALK TO...

hi there yes hes had all the allergy test done and they all negitive... and i try not to use the steriods as much but there just seems to be nothing much i can do for him... x

Jimbob
Posts: 336
Joined: Thu May 08, 2008 9:00 pm
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by Jimbob on Mon Nov 07, 2011 2:24 pm

Re: JUST NEED SOMEONE TO TALK TO...

Do you see a Dermatologist? Has your son ever been admitted to hospital to try and get his eczema under control?

Kelly x

yorkie2703
Posts: 105
Joined: Fri Apr 01, 2011 2:01 pm
Location: Hertfordshire
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by yorkie2703 on Tue Nov 08, 2011 12:52 pm

Re: JUST NEED SOMEONE TO TALK TO...

Hi
I am sorry to hear your little man is suffering.
What tests did you have? had you given him any type of antihistimine before the tests?

Fiona x

bexter
Posts: 5
Joined: Mon Oct 17, 2011 10:30 am
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by bexter on Tue Nov 08, 2011 2:03 pm

Re: JUST NEED SOMEONE TO TALK TO...

i know how u feel...not even my family understand...the endless sleepless nights..the constant pointing and staring when we go out...having to apply creams and give baths that sting and make them cry...im a prisoner in my own home a lot of the time. feel free to message me anytime..i know myself that just getting things off your chest can help a lot xx

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AnnaB
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Joined: Tue May 13, 2008 10:38 pm
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by AnnaB on Sun Nov 13, 2011 12:42 pm

Re: JUST NEED SOMEONE TO TALK TO...

You must go back to your hospital dermatologist, what steroids have you tried? Keep in touch here it is good to chat with people who understand
AnnaB
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becky80
Posts: 3
Joined: Tue Oct 25, 2011 9:35 pm
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by becky80 on Sat Jan 28, 2012 7:12 pm

Re: JUST NEED SOMEONE TO TALK TO...

i know how u must be feeling my daughter is 12 years old and it is so bad she asked me to take her to the doctors so she can have her limbs chopped of she also has to be wrapped up every night but oddly enough her face and back are not effected but eczema i think you should take him back to the doc and asked for him to see a Dermatologist as he is so young with such pure skin what bandages do u use i use tar bandages they stink but they help and steri paste u could ask ur doc if ur son is at the age were he could use them and u could try and use non bio washing powder and the one i use is called sure care and it has been specially approved for eczema suffers really do hope things get better for u and your son
becky

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crossmyfingers
Posts: 27
Joined: Tue Nov 08, 2011 11:10 am
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by crossmyfingers on Sun Jan 29, 2012 9:56 am

Re: JUST NEED SOMEONE TO TALK TO...

Hi,

I just wanted to say that i'm sorry for all of us for having our child/ren to go through this terrible disease. Eczema sucks!
Anyways I also agree about going to see a specialist.
My boy isn't as bad as yours but he was told by the Paed. Allergist that he was infected so we had him in a bleach bath - maybe you can talk to a professional about it? It's very similiar to bathing in a swimming pool as it kills most bacteria on the skin. Anyways my boy who's 6mo rubs his eyes occassionally but doesn't cry or have red eyes so i know it's not too strong and it works VERY WELL for him.

Hope you can find some friends and support here *hugs*

tigress33
Posts: 2
Joined: Tue Apr 03, 2012 3:56 pm
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by tigress33 on Tue Apr 03, 2012 4:04 pm

Re: JUST NEED SOMEONE TO TALK TO...

Hi. if you want to talk, I have a son who has eczema since he was 4 months old. My email is rogoza1@op.pl

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