Lamellar ichthysosis

[sunil ismail]

Am a by birth ichthyosis patient. I just want to know is the GENE THERAPHY is effective for lamellar ichthyosis? If it's so could please suggest me a gene therapy center in any where of the world. Waiting for your reply

Thank you in advance

Regards
Sunil Ismail

[Dr Roger Goulds]

There was a paper written in one of the journals some time ago about gene therapy and LI, but I do not know of any further advances, I believe research is still being undertaken. It is not clear where you live but there are several organisations that provide information and support. The Foundation for Ichthyosis and Related Skin types, www.firstskinfoundation.org , The British skin foundation, www.britishskinfoundation.org, the European network for Ichthyosis , and www.ichthyosis.co.uk