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Women's health stories

Whether it's going through the menopause, living with breast cancer or coming to terms with endometriosis, you're far from being alone. This is where you can hear other patients' experiences of living with and treating certain women's health-related issues. If you’d like to share your own story, please get in touch with us!

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PVNS

I'm one in a million

Today (28th February) marks Rare Disease Day, a day that didn't really mean anything to me last year, well why would it?, I wasn't aware that I was suffering from a rare disease, and didn't know of anyone who did; however this year it is different.

I wasn't planning to blog about this, however I feel compelled to help raise awareness of a condition that I am suffering with. Regular readers of my blog may recall that last year I underwent an MRI scan and knee operation. 

The results of my MRI scan identified that I was suffering from the early onset of something called Pigmented Villonodular Synovitis or PVNS for short. My consultant and I didn't really talk in too much detail about it, as we hoped that the operation he was going to perform would alleviate the severe pain that I was experiencing.

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Kimberley, UK